Introduction

Recent studies have shown an increasing incidence of colorectal cancer in Asian populations. According to the Second Report of the National Cancer Registry1, colorectal cancers accounted for 14.2% of male cancers and 10.1% of female cancers in Malaysia, making it the commonest cancer among men and the third most common cancer among women respectively. Colorectal cancer is the third commonest cause of cancer-related mortality in Malaysia.

1. Gerard Lim CC, Yahya H. Second Report of the National Cancer Registry, Cancer Incidence in Malaysia. National Cancer Registry, Ministry of Health, Kuala Lumpur, 2003.

 

Rationale/Justification

At present, the National Cancer Registry only collects data on the prevalence and incidence of colorectal cancer by age, sex and ethnicity.

The National Cancer Patient Registry-Colorectal Cancer (NCPR-CC) is established as the first colorectal cancer registry in Malaysia to systematically collect data on all aspects of colorectal cancer relevant to its prevention, management and treatment evaluation in Malaysia. This information is useful in assisting the Ministry of Health (MOH), Non-Governmental Organizations, private healthcare providers and industry in program planning and evaluation, leading to improved colorectal cancer prevention, management and control.

 

Objectives

The objectives of the National Cancer Patient Registry- Colorectal Cancer are to:

  1. Determine the prevalence of colorectal cancer in Malaysia. 
  2. Determine the sociodemographic profiles of these patients. 
  3. Determine the risk factors in the patients with colorectal cancer. 
  4. Determine the histological types and stages of presentation of colorectal cancer. 
  5. Evaluate and monitor the outcomes of surgery and oncology therapy based on selected performance indicators such as
    1. disease-free survival rates
    2. mortality
    3. complications of treatment
    4. side-effects of treatment
    5. patient’s quality of life
  6. Determine the cost burden to the nation by colorectal cancer and the cost-effectiveness of treatment and prevention programs.

 

Selection of subjects

Being a patient registry, the eligibility criterion is deliberately broad (any patients undergoing treatment for colorectal cancer at any clinical centres) to reflect real world practice and to ensure the sample is representative of the population at large with colorectal cancer.

Inclusion criteria:

All histologically verified primary colorectal cancer cases from participating sites (irrespective of the staging, histopathology, duration of the disease) reported during the study period.

Exclusion criteria:

Any patient who received their treatment at participating study sites not within the study period. Anal cancers and metastatic lesions to the colorectum are excluded.

 

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